It often comes as a surprise to people when I say that my autism includes being selectively non-speaking – I am an advocate, and so I end up speaking a lot (although thankfully much of it these days can be in written form, which is helpful now that I also have dysphasia).
I was born into a family where both of my parents and my sister, who was also learning disabled and later physically disabled, suffered from severe, and extremely stigamtised, mental health illness during a time when there was no medical treatment for them, and the pressure to keep it hidden was tremendous. Nevertheless, as a mental health carer to each of them, they all needed an advocate in different ways. I was the eldest child and a carer from the age of 5. But I wouldn’t have known how to advocate, how to do that, if I hadn’t had my maternal grandmothers, who were also advocating for me, and under tremendously difficult circumstances.
If you have read any of my most recent poetry, you might have gathered that I am coming to terms with another facet of my mother’s death almost 3 years ago: she never told me the truth about my biological father. In fact she never told me anything, not even to acknowledge that the man I grew up calling dad wasn’t my biological father. She had decided I wasn’t ever to be told, and perhaps more fundamentally, didn’t believe I had a right to know. She saw it as a secret about her, and if I were to be told, that could only happen if I “earned” her trust. I was never going to be able to do that.
And yet I knew from the age of 5 that my biological father was not my dad. How I discovered that is a story for another day, but I am deeply grateful that my grandmothers – my mother’s mother and grandmother – had both prepared for the day it would happen.
When my mother ignored my questions, I turned to them; because I was already acting as carer to my parents and helping my mother with my sister, they were helping me in turn as much as they could. We had a language between us, a code: I knew I could rely on them to be honest with me.
A promise had been made to my mother under the assumption that she would tell me once I was old enough – an assumption that my grandmothers were now regretting. So my grandmother told me there was a truth to be told but that I was a little bit too young to understand; and that, hopefully, my mother would tell me when I was a little older. [Note to parents: your child is old enough to be told, in an age appropriate way, at the age they ask the question]. In the meantime, if I was mixed race, then I should try to remember it was nothing to be ashamed of (quite a lot of people, most of all my mother, were acting as if it were), and my grandmothers would always remind me – and my mother – that I had no reason to feel ashamed.
What had led to my questions wasn’t ignored either; my grandmothers had my back, and what could have been an isolating and frightening situation was dealt with: they made sure that I would be safe, and I was; and I was particularly lucky because they found an ally in my Infant School headmaster. It was only later in my life that I realised that my grandmothers had also provided me with necessary tools that made so much difference by ensuring that I started school with the ability to read, and write, well beyond the normal scope of a 5 year old.
It hurt my great grandmother especially – she had never known her biological father, but her mother had been truthful with her all her life, and her step-father had given her his name and adopted her, which was very unusual for the time, so she had long since come to terms with it. And had my biological father been just another white guy, she would have been perhaps less hurt by mother’s dishonesty, but she had played a big part in my mothers upbringing and my great grandmother was a passionate (and active) anti-racist. She had raised my mother better than to seek to both hide my father and his identity from me, and me from my father – because of his identity.
I have universal vitiligo; its the rarest form of vitiligo and I’m scared to talk about it openly, because when it started my mother absolutely freaked out in a way that terrified me. We live in a post-Rachel Dolezal world, so that also makes me nervous: I’m in my 50’s and have never admitted to something which is pretty fundamental to who I am. Vitiligo is an autoimmune condition, the first that manifested in me, and can also be genetically inherited. I don’t know if that’s the case for me. I can’t know, because of what my mother did.
I was left with 2 patches of darker skin: one on my neck, which eventually also faded after my children were born, and another on my torso, which I somehow managed to keep hidden from my mother (although being a carer, as opposed to being entirely dependent on my parent probably helped that). I learned the hard way not to make any reference to it – my mother could be very nasty when she wanted to be and any reference at all to anything to do with my father’s identity always provoked that side of her.
The last time I ever tried was when I was about 16. We were clearing away in the dining room after tea one Sunday evening. Dad was asleep on the chair, my siblings were elsewhere in the house. I pointed to the patch on my neck.
“Where do I get this from anyway?” I asked, trying to keep my tone super casual and light.
“It’s just dirt, you need to clean your neck properly,” she replied. The response was fast, her tone flat, and cold.
I honestly don’t know what hurt more about the response – that I actually went up to the bathroom and tried to scrub it off, or that she had said it at all. I only know that I literally cried with relief the next morning when I woke up and it was still there.
I escaped to my grandparents’s house in Norfolk for a weekend to spend time with my grandmother. My grandmother was deeply creative, and was always looking for ways to reassure me I had no reason to feel ashamed – and later, she started looking for ways to tell me at least something about where I came from, and how I got here. That weekend we went to the local market and ‘happened’ to find this beautiful, silky mustard coloured material, decorated along the bottom with Arabian horses mounted with Ottoman horse riders. I suspect she had found it already and had asked the stall holder to save her some. She made me a skirt with it, which I loved. And sometimes, when my mother was being especially unreasonable, my grandmother would put herself directly between us and give my mother A Talk. She did that after that visit too. I won some peace for a while – but I lost the skirt. My mother found it.
Throughout all those years, gently, insistently, persistently, my grandmothers kept trying to get my mother to see that I needed the truth. My mother put me under an insane amount of pressure, and held my father’s identity over me like the Sword of Damocles: I couldn’t be trusted because of my father’s identity, so I had to earn her trust, but could not earn her trust because of my father’s identity. For a long time I couldn’t acknowledge, even to myself, the real problem; no mental health condition causes racism.
My great grandmother took care of the spiritual stuff; she made sure that, before I ever came to faith, I understood that Jesus was an Arab Jew, and a revered prophet in Islam. She loved her Muslim neighbours; she loved cooking with the women, baby sitting for them when they needed it, and loved learning about the Islamic faith. She made sure my prayer life ran deep, and that I trusted my faith and my instincts. She was CofE, but also Quaker, Baptist, Anglo-Catholic – she worshipped as she felt led and that ability to see beyond denomination, beyond creed is very much part of my faith DNA now.
And then when I was 19, my wonderful great grandmother had her third stroke and moved out of her beloved corner of London to move in with my grandmother and grandfather. (His role in all this is ubiquitous, but again, that’s a story for another day). I could tell that my mother felt like she had won a reprieve – she became more strident at home again, getting angry at things in me that ought to make any parent happy: patience; forgiveness; loyalty; compassion. She saw him in me and I just felt lost, and utterly confused. The gaslighting was starting to wear me down. And yet… I also doubled down on those things which seemed to most remind her of him.
It’s an interesting way to rebel, to seek to be more forgiving, more compassionate, more patient, more kind, more open minded. Later – much, much later – I came to realise how much of an influence my biological father has been on me, even though we have never met, and are never likely to; and there is comfort in that.
My great grandmother had always promised me that she would be there for me until I was 21, and although she had 3 more strokes, she kept that promise. She even found a way to say goodbye, just as she had promised me too. When she died, I had locked away any questions about where I came from, and retreated into treating my mother’s inexplicable pressure and distrust of me as part of her mental health issues.
It was having my children that ignited the spark of anger, I think – they knew where they came from and I did not. My parents had divorced and still my mother could not tell me the truth. She had re-married and divorced again, and still could not tell me the truth. When she came to visit my ex-husband and I where we lived in Sheffield, with a vibrant Muslim community where I was making many friends, my mother stayed in our flat the whole weekend and refused to leave it, even to visit the Moroccan coffee house around the corner that displayed local artists work which you could buy.
One of the many things I had also personally been struggling with was serious gynecological issues for many years and whilst I was living in Sheffield I was due to have a scheduled hysterectomy; as they began the procedure they discovered I an ovarian cyst (my wonderful woman surgeon was seriously impressed with the size of it) which had just gone nuclear so my scheduled surgery became emergency surgery. My heart was re-started twice (it feels like an elephant has jumped on your chest), but they saved my life.
I returned to my home city as a newly single parent minus more than just a toxic spouse. It didn’t take long for my mother’s faux sympathy to melt and very soon she was once more wearing me down with endless criticism, pressure and gaslighting. My grandmother happened to phone after a particularly bruising encounter and for the first time in a few years I gave voice once more to my frustrations.
“What did I do? What is this thing that stands between me and her, Nan? I know I didn’t put it there, whatever it is. Why won’t she talk to me about it? Oh, gods, I’m sorry, it’s not your fault. Are you okay? How’s granddad?”
She soothed me. I know a phone call to my mother followed, and once more my grandmother put herself between her daughter and her granddaughter. It was an unenviable position to be in and I cannot imagine how hard it must have been for her. I was so much more aware by then of course, being a parent myself by that point, hence my apology.
I needed to find a way of advocating for myself to my mother.
It was the last time I ever asked my grandmother to advocate for me – I didn’t want to put her in that position again. She was becoming frailer herself and very soon was going to need my mother to help take care of her. She did not this making that harder.
Slowly – very slowly – I began to find my voice. I began to think more clearly than I had for a long time. I thought about the ways my mother herself could not contain the secret, how she saw my father in me every day, all the time, and as a result, said and did things that revealed small, tiny details that would seem like nothing on their own, but taken collectively began to make up more pieces of a shattered jigsaw puzzle.
I thought about all the ways that my grandmothers – knowing better than I would for years that my mother would not relinquish the truth – found creative ways of communicating little details to me. The skirt my grandmother made for me; my first school photograph, hung with my siblings first school photographs in my grandparents house – their pale skinned, red haired faces with mine, pre-vitiligo, always hung opposite the front door so that it was the first thing my mother and I saw when we visited. A reminder to me that I had a truth to fight for, and to my mother that she had a truth to tell. The summer my grandmother made me an Arabian Princess costume for a fancy dress competition at the village fete, when I was 7… my mother’s sucking-lemons face was priceless. (I won. My grandmother beamed). And my great grandmother, who taught me about listening to my instincts, to my inner voice, and how to trust God in prayer, who blessed me with a faith you could bend a rock around whilst still having a wide open heart.
Neither of them were perfect. My grandmother was a nightmare mother-in-law and my poor aunt put up with a very great deal over the years, with a great deal of grace. And my great grandmother had her own faults – mine is in averting my eyes from them. We shared the experience of not knowing our biological fathers, but more than that, she trusted me. She trusted my instincts and encouraged other people to trust my instincts too.
They held in the balance for decades an impossible situation – because whilst the reasons that my mother kept the secret of my paternity had nothing to do with her mental health, any attempt to raise the subject was taken as an attack and provoked issues with her mental health. And so they made skirts, and fancy dress costumes, taught me to trust my instincts, and blessed me with faith.
It was the best they could do, and when I got my DNA test results, it confirmed that it had been more than enough, because I had understood correctly what they had found a way to say to me, without words. I guess it helps that I’m also selectively non-speaking to be honest.
I do not know my father’s name, and that hurt’s in ways I cannot put into words. I know that he is patient and kind, forgiving and open minded, loyal and compassionate; I am proud of him too, and pray for him constantly. There are some other things I might know too, because my mother was never very good at keeping secrets, but whether I will ever be able to confirm them, or find out what my father’s name is, I do not know.
My mother hid my existence from him, because of his identity. And whenever the pain of that bites down, I remember that my grandmothers fought to teach me pride, to help me remember where I come from, creatively, with great love, so that I can at least know I am some of the things that my father is. And I will try to honour him, and honour God with that – and advocate for anyone who is isolated, alone, and marginalised, as my grandmothers once advocated for me.
[*In the cover photograph, my grandmother is the woman on the left, my great grandmother is the woman on the right. The tiny white haired woman in the middle is my great great grandmother and the baby she is holding is my mother.]
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